Showing posts with label living with food allergies. Show all posts
Showing posts with label living with food allergies. Show all posts

Thursday, April 16, 2015

On Food Allergies: Another Life Lost, Another Lawsuit

       My heart breaks every time I read another food allergy related death in the news. 

      As you may have known, Child#2 and Child#3 who both have multiple food allergies and asthma, are high risk for anaphylaxis. Though we haven't had a trip to the ER related to it yet (Thank God!), the fear of having a severe reaction every time they eat is always there.  

       Last month, there were two food allergy related news that created a stir in the web. Though both has been shared a few times in several food allergy groups on Facebook, I can't help but share it to you and voice out my opinions about it. 

      The first story was about the parents of an 11 year old boy from Alabama who died last June 3, 2014 due to an anaphylactic reaction to tree nuts.  They are now suing their local Publix Grocery Store for the death of their son.  

        According to the article,

"The purpose of the lawsuit is the raise the awareness of food allergens that are potentially fatal in children, to have Publix follow the federal law in labeling food allergens and obtain some measure of compensation for the family."
The family is suing for mental and emotional distress and suffering, as well as punitive damages in an amount to be determined by a jury.

       You can read the full story here.

     The second story was about a family from Minnesota who filed a lawsuit against a local diner after their 16 year old son who has a severe dairy allergy passed away from complications due to an anaphylactic reaction. They were saying that the restaurant's negligence is to blame for the untimely death of their son.  

     Check out the full story here.

Photo courtesy of CreativeClam 

    After years of dealing with my children's food allergies, I have to say, these news were quite disturbing for me.  Yes, both incidents, though had a tragic end were instrumental in spreading information about the severity of food allergies. Their stories were a proof that a food allergy is not a joke or a hype. I can't even imagine the pain of losing a precious child over a piece of cookie or pancake.  That's why I'm really saddened by the loss.

     The lawsuits however, don't have my sympathy. In both cases, the restaurant, grocery store and their employees showed that they lack the necessary knowledge and precautions to handle food allergies. That doesn't mean though that the sole responsibility of the deaths is theirs alone.  (I'm not a lawyer just an opinionated mom).

      As much as I hate to say it, the parents did make a lot of mistakes as well. They broke some cardinal rules of managing food allergies such as:

1. Know the ingredients of what your child is about eat.

      That's the main reason why we read food labels and ask for better food labeling. In both scenarios, the children ingested food that are not even labeled. We are not talking about fresh or frozen fruit or vegetables here. To be more specific, it's a chocolate cookie and pancake. Products that require several processed ingredients which can be easily exposed to cross contamination. Plus, both can are often times made with ingredients (nut and dairy), the boys are known to be severely allergic to.   If you don't know what's in it, just say NO!

2.  Too much trust on food servers.

       In both cases, the moms did ask the store associate and food server if the product they were about to get is nut free / dairy free.  That's why the plaintiffs are pointing their fingers to these people. I'm not tolerating ignorance but not everyone is well knowledgeable with the words "dairy free" and "nut free" . Some so called "experts" tend to get confused too.

      For instance, tiger nuts, peanuts, water chestnuts and coconut (though the USFDA decided it is and I don't know why) are technically not a nut even it is part of their names. Pecans and cashews are types of nuts. Unless you know your food really well, it is very easy to make a mistake.

       The same holds true to dairy. Now here's an interesting fact. The USDA classifies cream cheese, cream and butter (milk based products that have little or no calcium) as not part of the dairy group. This is shown in their website.
     
3. Medication and emergency protocol.

     Now, this will be the hardest to swallow especially to the parents of the 16 year old teen. He ate without any immediate access to his epinephrine. Also, the reluctance to immediately call 911.

     Did I ever forget to bring my children's epi? Yes! A few times especially after I change bags.  Did I allow them to eat? A big NO! I treat their epi as a soldier's gun. I will not go to any battle without it.
      Though I never mentioned to my children that we are not eating at the restaurant because I left the epi, I made countless excuses such as "The waiting time is too long." "The place is dirty." and the reason no one can argue about, "Mom is not feeling good right now. I really need to go home."
     
     Dealing with food allergies is not an easy task. As much as we want others to accommodate our children's special needs, let us not forget that we are responsible for our child's survival. We know first hand that a mistake can be fatal. That's why we have to be extra vigilant.

     I know how hard it is to see faces of longing or hearing complains of hunger.  So let me end with this message my kids' allergist always tell me every appointment.
   
     "2 or even 4 hours of hunger will not kill your child.  A tiny bite however, of something he/she is allergic to can."        

- Roz
      

Tuesday, July 1, 2014

52 Weeks of Simple Changes for a Healthier You Series

    I can't believe it's July already!  The first half of 2014 went really fast for me.  How about yours?  Were you able to keep your New Year resolutions?  I confess I wasn't.  But hey, we could always start again.    

    Since we're on the topic of starting. Last month,  I received the results of my annual physical exam.  I confess it has been two years since I had one. To my delight, all my numbers including cholesterol, glucose, sodium and iron came out normal. For someone who has thalassemia since birth, the later was one exciting news.  I can't help but smile when my doctor said "I don't know what you are doing how you got this results.  All I can say is Keep it up." 

    A few days later, my husband's results came out.  To our surprise, his results were a total disappointment!  Aside from his shell fish allergy which we've known for ages, it turned out that he is also allergic to egg, dairy, rice, oats, wheat, barley, rice, corn, soybean and several types of fish including tuna and salmon.  On top of the new allergens we have to deal with, his cholesterol level is through the roof.

    Our friends who are in the medical field were boggled why his doctor haven't prescribed him some medications yet.  According to our primary care doctor, he's giving my husband 3 months to lower his cholesterol the natural way.  This meant being active, exercising more often and most of all diet change.  If my husband's numbers haven't changed or God forbid increased, the doctor will have no choice but to put him on maintenance medication which has adverse side effects on other organs.

     When I first learned about my husband's results, I can't help but ask "How can it be?".  For more than 3 years now,  I've been on top of our family's food and nutrition.  Since the kids were on a limited diet, I've been extra keen to make sure that the food I prepare is not only tasty but most of all nutritious.  So far, all the children and I don't have any issues with our current medical tests.
     
     What's the difference then?  We all eat almost the same meals everyday.  As I look back and reflect on what other things I could do to help his health, it hit me.  My kids and I have habits which my husband doesn't have.  It may seem too simple or insignificant at first but I believe it is the small things that made the huge difference.



      As I help my husband acquire these new habits, I decided that it is also the best time to answer most of the questions I receive from readers and friends about healthy living.  For the next 52 weeks, I'll be sharing the small changes the kids and I made for the past 3 years which resulted to:
   
        * less nutrient deficiencies (even on a limited diet)
        * good numbers on cholesterol, sodium, blood pressure, iron
        * steady weight loss of me and weight gain for Child #3
        * lesser asthma attacks and medications
        * clearer skin and lesser eczema outbreaks
        * fewer sick days
         and more.
      
      Because a journey is always better and more fun with friends, I would like to invite you to join us in this 52 week (Yes, it's a full year) Challenge.  Every Saturday, you will receive a newsletter from me that's filled with budget friendly tips and a recipe or two that will help you and your home become healthier each week.   I promise, each step will be simple and yes, I will never fill your mailbox.
        
       So what are you waiting for? Are you in for the Challenge? Subscribe below and let's all start getting healthier.

- Roz


Subscribe to 52 Weeks of Simple Changes to a Healthier You Series





Disclaimer:
      I am not a medical professional.  All the tips that I will write in this series are based on our family's experiences and with the full consent of our doctors.  My intention is to give ideas and not to diagnose or treat any medical conditions.  Always consult with your doctor.

Monday, May 19, 2014

Angels in Disguise

"It takes a village to raise a child." 
                        - African Proverb

    In the case of my four children, I think a town or two.  Seriously, I do believe that everyone a child meets, whether by accident or not, plays an important role in his or her development.  A simple look, an act of kindness or a passing message can have a lasting impact that will forever be a part of that little one's life.

     As we celebrated Food Allergy Awareness Week, I couldn't help being emotional as I acknowledge the wonderful people who constantly help me raise my kids.  Their acceptance, kindness and never ending support not only made our family's journey with food allergies much easier, it also gave way to wonderful memories. 




1. Teachers and School Staff
        Thank you for making the schools peanut free and the classroom nut free as well.  Your wonderful policies such as No food birthday celebrations, list of healthy approved snacks, very few food related activities and bulling have made my life as a mom so much easier.  By constantly reminding the children that they are a family, you have instilled the value of individuality, respect and compassion.

2. Town library staff
         I can't thank you enough for sponsoring kid friendly programs that don't center on food.  If ever there are snacks, you always make sure that you have some safe treats even if it is often pricier.  How can I forget the patience you've shown when I was looking for food allergy related books?  From a collection of about 5 books, you now have a huge selection that I and other food allergy patrons can enjoy.  Please keep the collection growing every season.  

3. Cub Scout and Girl Scout leaders
         You all have done a great job in balancing normalcy and safety.  Thank you for being on top of all the allergies of each Scouts (peanut and nut free snacks only) and not making a big deal when a child isn't comfortable eating.  Through you, all the kids learned the it is fine to say "No."

4. Master Sensei, Karate teachers and students
      Even if Child #3 is the smallest in the Dojo, you never fail to encourage him and point out his strengths.  You even allow him to partner with some of the older, high ranking students.  The proud look on his face when he first pinned down a much bigger kid to defend himself will forever be cherished.  Thanks for teaching him discipline and self confidence.  

5. Choir Master
       Thank you for your dedication.  Through you, my girls are learning commitment, discipline and most of all the value of giving without expecting any tangible return.

6. Pediatrician, Allergist, Gastroenterologist, Dentist and their Staff
        You all go beyond what is required to make my children healthy.  I am so blessed to have you on my team.  In spite of all the testings and countless visits, you made sure that the kids are happy and comfortable.  Honestly, they are always happy to go to your clinics.

7. School Parents
     I have read so many horror stories about moms not getting along with other FA moms. Thankfully, I'm so blessed to be in the company of super loving and supportive parents.  I'm so grateful for still inviting my kids to parties and play dates.  For us, it's all about the children having a great time and not elaborately decorated treats.

     Finally, all my children's friends, classmates and fellow scouts.  Instead of avoiding or excluding them, you look for things that you have in common.  Thank you for being their voices and having their backs when they are too shy or weak to stand up for themselves.

      Truly, when God gives a challenge, He sends Angels to help us go through.
               

- Roz 
        
           
         
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